Where do we go from here?

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So what are my options then? Where do we go from here?

Well I’m afraid we’re rather limited at the moment. There are a few things in development with CFS, but they’re not likely to materialise for a year or two.

But you can put me down for the Cognitive Behavioural Therapy?

Yes, but you do understand it’s not a cure, just a help for managing your condition.

I understand that. But you have no idea how long the waiting list is yet?

Not yet, no, but I’ll keep you informed. However, we’ll keep you on 40mg of citalopram to combat the mood drops meanwhile.

And I’ll go and see the specialist again in February, although I don’t expect anything to come from it.

Admittedly he didn’t tell us anything we didn’t already know, Mr Ayres.

The problem is I still don’t know whether this is something that will sort itself out in 6 months; will ease off after 5 or 10 years, though I may never fully recover; stay like this for the rest of my life; or whether it is in fact degenerative and I’ll only ever get worse.

It could be any of those four options, we just don’t know.

So what I have to really do now is just build my life around the fact that for the foreseeable future – the next few years or more - I have to live with this Fatigue, with no real end in sight.

Well I am hopeful of developments on the way...

But they might not be available for quite some time.

I’ll keep you up to date, Mr Ayres.

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There wasn’t a bar of chocolate in the house big enough to plug the great gaping void in my chest last night.
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