BBC Alba has just run repeats of the 2 episodes Trusadh - ME: The Toxic Tiredness - which I took part in.
The programme is about ME/CFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome): the effects on people living with it, the variation in acceptance by the medical profession as to whether it exists or not, and possible causes. It also follows a couple of us as we go through a controversial treatment, Mickel Therapy.
It's 2 years since it was originally shown, meaning it's close to 2½ years since I began the therapy - which consisted mostly of 1 hour talks, via Skype, with Dr Mickel over a period of several weeks.
Although I would not say I'm 100% better, I am considerably improved on where I was before I began the Mickel Therapy.
Because we tend to normalise whatever state we're in, sometimes I forget just how bad I was. For more than 5 years, this debilitating condition ruled my every waking moment. But revisiting it by watching the programmes and then going over my old blog posts I can see just how far I've come since then.
And the biggest thing is the realisation I no longer live in fear of the soul-wrenching tiredness and the deep concern that my life was all but over and I was just treading water until I died.
For those who have an interest in the condition, the TV programme and/or my experience and understanding of Mickel Therapy, I have put together a set of links to YouTube versions of the programme and to blog posts where I go into detail about these things. And if you really want to immerse yourself in it, do read the comments of those posts too where sometimes ideas are expanded or debated by people who have other points of view.
The experience of being filmed for a TV programme
ME, me, and Gaelic TV
The Trusadh TV Programmes (largely in Gaelic with English Subtitles) via YouTube
ME: The Toxic Tiredness (Part 1)
ME: The Toxic Tiredness (Part 2)
My definition of Chronic Fatigue Syndrome
What is Chronic Fatigue Syndrome?
What the experience of ME/CFS felt like for me
Travelling at the speed of life
Win some; lose some: you’re a lost cause
Dealing with a little bit of prejudice within the ME community
ME and CFS - is one more real than the other?
My understanding and interpretation of Mickel Therapy
Who's in Charge? (note - although this post doesn't explicitly mention MT, it is important for laying down the foundations of understanding)
What is different about Mickel Therapy? Part 1
What is different about Mickel Therapy? Part 2
What is different about Mickel Therapy? Part 3
If you have any questions, then feel free to ask.