Perhaps she was slightly more tactful than that, but the meaning in what the doctor said this morning was essentially the same.
I’ve had all the usual array of tests (again) and everything is coming back as negative (again).
“We have people in here all the time suffering from varying degrees of tiredness, and in most cases we’re able to identify what’s wrong and help them. But every now and then…”
Every now and then they just have to shrug their shoulders and say we don’t know what’s wrong and we don’t know what else to do, so you’ll just have to live with it*. Now excuse me I have more patients to see.
The sense of being written off and abandoned is somewhat overwhelming today.
I’m 43, not 83.
I shouldn’t have to feel it’s ok to go for a walk in the park so long as there’s a bench for me to sit on.
I shouldn’t have to feel the best of my life is now behind me.
I shouldn’t have to feel I’m treading water until I die.
*For those who want an insight into what CFS feels like to live with, click here
**Don't mind me, I'll be fine tomorrow. Probably.