I went to see the blood specialist in Dumfries this afternoon.
What I was hoping to hear:
That I have a recognised condition, where no one can say, “Did you hear of that Olympic athlete who had CFS and just decided it wasn’t going to stop her and she won gold,” or “It might get better on its own, but it might not, and it might even be degenerative, we have no idea," or "Have you thought about Crystal Therapy?"
That I would be able to say, “See! See! I told you I was ill, that I wasn’t making it up”
That it would be something serious enough to be recognised, but not so serious it would be incurable, unmanageable, terminal or requiring painful or lifelong treatment.
That I would finally be able to get rid of the label, Chronic Fatigue Syndrome
What I actually heard:
I definitely have Haemochromatosis, which is going to require lifelong periodic blood-letting.
But at the moment it’s at a relatively low level and is highly unlikely to be the cause of my Fatigue.
Now I have both Haemochromatosis and Chronic Fatigue Syndrome (and let’s not forget the B12 deficiency either, requiring lifelong periodic jabs, also not the cause of my CFS)
I plan to spend the evening curled up on the couch feeling thoroughly miserable and sorry for myself.
And I don't want to hear about people in the world being worse off than me. It NEVER makes me feel better